Hey Tina & group,
I received IVIG.The pain I’m experiencing is in my lower back as I have two herniated discs and one ruptured however,since the gbs I have excruciating leg pain.The pain is from the waist down but,the legs are a mess.Last week I was in the basement collecting some stuff to bring up stairs and when I crouched down to gather a few things,It felt like someone shoved thick knitting needles in behind my knees.I just said “I’m done “and figured that I would go back to some semblance of normal the next day.Since then I have come to the conclusion that something went horribly wrong that day.
I have called the pain specialist and the secretary practically said”sucks to be you”and that I don’t get to see him till the 12th of this month.I’m hurting so very badly and I am rapidly running out of pain meds….I don’t know what to do.
I know I’m not the only one suffering from depression that is directly related to post gbs residuals but,It’s getting really bad the past several days.
I would really like to have an annual get together to talk to alot of you face to face.
One question I would like to ask of anyone is…Has your condition worsend in the last few months or years.I’ve had people tell me that it doesn’t degenerate but,I have the feeling that it does indeed worsen.I don’t know …maybe I am going crazy.My state of mind isn’t what it was a little while ago.
I would give up everything I own to go back to the way I was before I was struck with gbs.I don’t want to whine and try to make your day crappy,it’s just that I feel that I can speak freely with other people that have survived the gbs but are still dealing with the after effects.