Hello

Hi everyone. My name is Beth and I was diagnosed with GBS in 1991. I was 13 years old. I was paralyzed in both legs and on the left side of my face when I was taken to the hospital and life-flighted to Cleveland Clinic Foundation. It took them a week or so to diagnose me. Luckily it never reached my lungs. I was treated with what I think they called gamaguard. I may not be 100% on that. It was a long time ago. I was treated and appeared to have fully recovered. I never had PT, and never even follwed up as far as I can remember. We moved around a lot when I was a kid. Now, 16 years later, I’ve started having really strange symptoms. I’ve had back problems and sciatica for as long as I can remember, but the past couple of years it has been horrible. I started pain management and had a couple of injections that made the nerve pain worse. Last week the right side of my face went numb (the leg pain has always been mostly left sided), I had tingling and numbness in my right arm, and I felt very weird (for lack of better verbage). I went to the ER and they did a CAT scan and some blood work. Everthing came back fine, I was told to follow up with a family doctor.

It occurred to me that my problems may be related to GBS. I started searching the internet and found this site. I never realized the significance of the illness I had. Should I find a neurologist in my area that specializes in GBS? Maybe I should have never had the injections for my back. This is all a little overwhelming to me.