Headaches after GBS

November 2, 2006 at 10:45 pm

Hi Fairy Odd Mother

I too have what I guess is headache. Its not a pounding or an aching as such. Feels like an arthritis pain in no particular spot. If I lay flat for a long time it really bothers me a lot and I must roll over on my side. Of course then my ear gets numb from laying on it. I have often thought it might be part of the fatigue. When I was in rehab the therapist had me lay flat and force my head onto the pillow and that is where this started and it would hurt so much later I told her I no longer would do that. The past two days mine has been bothering me terrible. I have tried to nail down where this is coming from with no luck except to assume it is fatigue. Extra Strength Tylenol helped today. I very seldom have any pain I need to take meds for but this really got to me today. I am almost 4 1/2 years since onset. I have many residuals but am doing okey even though I must rely on wheelchair and walker. Life is for living and I’m trying not to waste what I have left. I’m 66.
I hope others can give us a clue as to what is causing this ache.

Take care.