having them understand the disease

July 20, 2006 at 2:39 pm

Having someone understand what is going on in this disease is extremely difficult. There are few outward visible signs for someone to see. It is like watching some one with a tooth ache or a head ache.

Some where I have a half page discription(CIDP) which I had out to people who don’t know what is going on. I found that if you hand them any more they will just throw the paper in the trash with out fully reading the contents. I will leave my e-mail address if you want the discription. It is that I am pressed for time today.