Hand and leg cramps…

January 3, 2007 at 7:02 pm

I too can relate to the pain and discomfort caused by unexpected cramping in my hands and legs.
I find the problems with my hands most likely to happen during active, repetetive periods, mostly while shaving. My thumb will close tightly against the palm, and it takes a few minutes to relax back to normal.

Leg problems are more severe. Always at night. Sometimes after finally falling asleep I will experience a severe cramp or “charley horse” in my right or left calf, or sometimes up into the back of my thigh..(hamstring ?). The worst pain I have had since the onset of neuro problems 3 years ago.
My neuro started me on 2 mg of Zanaflex at bedtime, which did help for a while but the nightime cramping has returned in a big way. My neuro also suggested I drink a glass of tonic water in the evening, hoping that the quinine would help with the cramping. Has anyone else heard of this ?

I am currently taking 1800 mg. per day of neurontin, as well as 5 mg. oxycodone as needed for severe break through pain.
I am just about three years removed from an original diagnosis of GBS that was changed to CIDP almost two years ago.
The cramping is a new symptom that started slowly with my hands, but has come on strong over the past few months. The leg cramps have left me without a decent nights sleep for some time now.
Good luck to all of those who experience this nasty symptom of CIDP !