good advice :) thank you

June 8, 2011 at 9:42 am

i agree–after reading here. I was diagnosed 2 years ago. Have been pretty patient with ivig , pred–which made me worse, and a conservative neurologist–who I really like, but she isnt being very aggressive. My plan is to get Dr. Dyck from mayo give some treatment recommendations. If nothing improves with his plan then YES—-contacting northwestern!!! By then my kids will be back in school and it will be easier.
Does the Dr at northwestern feel you will regain the strength and feeling after the sct.How damaged are your nerves—are you walking? I wondered if there was a timeline on the nerves—if they have gone so long can they still regenerate ? I have read posts from others who have had sct and it seems they are regenerating nerves–even axonal damaged nerves that have been damaged for a while. Was interested on the drs opinion on that at NW—did they say how long was too long for nerves to heal?
What about previous treatments–were they really strict on how many other things you have tried and failed? Age must also play into their decision? such an interesting procedure–i wish it was discussed more by all neurologists as a treatment option. Lori