Gene’s role…

May 25, 2008 at 11:59 pm

I understand what you are saying, having been on this forum for going on 6 years now. The majority of my posts were on the forum that was lost, I felt really bad when we lost so much information, as I had spent many many hours typing long posts with my two fingers! Back then there were a wonderful set of regulars who were extremely well informed about the various issues that people with both GBS & CIDP experience. I remember all too well when not only Gene, but Jethro, Marc M, Dick S, Cathy B, Brandy, Doc David, Jerimy, & others were all posting on a daily basis.

But after a certain amount of time, some people do feel the need to move on, especially if they have made a pretty good recovery. Gene was one of the few to stay on the forum on a daily basis. Many of us old-timers do read the postings still daily, but only post if no one else steps forward to state the basic facts; such as using neurontin to fight nerve pain, if you don’t recover from any exertion in 12 to 18 hours you have overdone it, get plenty of rest, GBS stands for “getting better slowly”, etc… I think there are currently enough active members who are able to pass these words of wisdom on. One can also refer people to the wonderful Search option that will bring up topics already discussed.

I continue to ready the forum daily, but do not post as much as I used to. I still have to type with 2 fingers & I tend to look for people with the most severe cases of CIDP like I had. I tend to find now that the majority of people with CIDP posting are still better off than the recovery I have made. But I hope that there will always be those willing to post Gene’s words of wisdom, as all of us know them so well.