gbs & pain

September 8, 2010 at 9:23 am

I feel for you! Pain in gbs in my opinion is not addressed as it should be! I feel terrible pain, weakness,fatigue,muscle pains & twitcing. I have been on lyrica 300mg 2xday for approx. 4 yrs. It helps some and its not a narcotic. we just need to stay on our dr.s case letting them know we are not normal feeling just because we look ok. I really don’t even talk about it to my family anymore, just try and suffer in silience. I am so happy to find this web site! People know what I feel like! Hang in there and just keep trying!