Gammagard or Gammunex?

April 24, 2011 at 10:48 am

I also was on Gammagard. I took it for 5 months in 2008-2009 and quite often starting Fall of 2009 to Jan 2010. On any occasion when I did not hydrate enough, and I mean, a lot, I had headaches for days and days. I always rest (means nap) after an infusion.

In Jan 2010 I asked to be switched to Gammunex C. Here is the description of what I am on now. “[I]Gamunex-C, Immune Globulin Injection (Human), 10% Caprylate/Chromatography Purified, is indicated for the treatment of primary humoral immunodeficiency disease (PI), idiopathic thrombocytopenic purpura (ITP), and chronic inflammatory demyelinating polyneuropathy (CIDP[/I]”

So, you might see that they are both 10% liquid solutions. I did not notice any remarkable difference. The similarity is, not enough hydration = headache.

By enough, I mean at least 6-8 glasses the day before and one glass every hour during. I know, if I don’t have to get up to go pee, I didn’t drink enough.

Yes, I agree, go slower. From start of my benadryl infusion to last drop of IV flush is 4 hours for my 35g. I start at 40 for 1/2 hour then 80/120/160 (each is 1/2 hour) & 200 max for the rest. Infusing too fast causes me trouble.

Best of luck.