First Round IVIG

April 17, 2009 at 6:54 am

Hi Trueblue06,

After reading you lead post, I said, “Thats exactly what happened to me”
I had a huge headache followed by days of nausea and really felt bad.
I did everything everyone said, and still suffered.

My headache was so bad, I took Ibuprophen, Tramadol, and percosett and still had it. Couldn’t move my head. Then the nausea. YUCK!

The thought of I don’t know if I can do this every month came to mind repeatatively. I expelled alot of nasty that the IVIG neutralized. I even told
my wife, if this is like this every month, I don’t know if I can do it.

After the first one, the last 3 went really well. small headache, no nausea, just some flu like ache for 2 or 3 days which was tolerable. My body muscle popped right back. I suffered with noticeable symptoms since Jan 05.

Hang in there. it is totally worth it. You next treatment will Go Better!

First Round IVIG

April 6, 2009 at 4:00 pm

Thanks for all the info. They got my husband in on Friday to an outpatient services facility and he had 40g friday, saturday, and sunday. Today he’s really tired. I thought of zbrd saying he feels worse before he feels better and that is my hopes. My husband talked to the neuro’s nurse today and he is to have treatments again wednesday, thursday, and friday of this week at 90g. So I guess now the loading dose? I sure hope this works and starts to make him feel better. We are from Southwestern Michigan close to Indiana. One good thing is this week is spring break so we had both taken off to do something with the kids. Our kids totally understand and it’s more important for dad to get better. We thought maybe Friday night we’d get a hotel room close to home so they can swim, etc. That’s enough for them. Thanks Dawn for advice. My husband was laughing at me this week because I have a notebook with each day how he feels now & I’ve read the gammagard bottles each time. I sure wish I’d kept something like that while he was in the hospital a year ago, but I thought it was a one time thing. I’ll sure do so going forward though.