February 7, 2007 at 11:36 pm

Hopefully the balance issues will improve with the IVIG, but it may not do much for the fatigue. It seems most of us with CIDP are affected by fatigue, no matter how little the damage might be; but I do think that those of us with more severe cases probably get hit worse. I have had to have a cleaning woman ever since I came down with CIDP, had to quit my teaching job right away, moved into a smaller one level home, had to give up all of my sports (due to inability to walk, other than with a cane & AFOs.) But for me, this is my new “norm.” But fortunately my youngest was 21 when I got hit, so we have had empty nest now for over a year.

Gone are the days of 3 teenagers at home, all of their activities to attend, teaching full-time, cleaning a 4 story home, doing all of the cleaning, cooking, laundry, bills, grocery shopping, errand running. And the funny thing is I don’t remember being tired back then? Fatigue continues to be my hardest residual to deal with, trying to keep an even balance so that I do not overdue. Like today, my husband & I ran man errands in town, so when we got home I slept from 4:30-7:00 & he knew to make dinner. He understands, as it has been almost 5 years for me now. Get some help, so you can be more “there” for the family.