Hi…..Facebook has a GBS site……also has a newly created GBS Survivors Group ……While the Facebook may not have some of the in depth conversations or the historical research that the international site has, it is nontheless a very supportive group and I have found it helpful. I encourage you to check it out and make your own conclusions. May this day find you well and recovering………..
There are a few but as you said this is the primary source that contains the most comprehensive info. This is the one I have seen that appears to have the most traffic
Guillain-Barre’ Syndrome Survivors