August 30, 2010 at 9:42 pm

yes i too have been told that it takes a long time for the nerves to regenerate–especially the ones in the feet. I just find it difficult to determine when they’re tingling etc after a treatment if they’re regenerating or degenerating–I think the reversal process can be like the damaging process??? Lori


January 10, 2010 at 11:58 am

Hello Ella,
If you feel okay about telling us where you live, it would give you a chance to find out if any of us lives near you. It’s a great support.

I have CIDP and I was told by three neurologists that nothing could be done and trying treatments was useless. Neurologist #4 was just for a consultation (too far to go to him) and he told me it’s never too late, which eventually led me to my great treating neurologist, #6.

Keep in mind that IVIG’S are used to “CONTROL” the progression and you may not always feel stronger and better. As long as you remain stable with the IVIG, it’s working.