I was diagnosed in late February 2011 and by the time insurance allowed treatment in early March, I was feeling some additional loss of control/sensation almost daily. Early on the morning of the fourth day of the five consecutive days of IVIG treatment, I felt no further loss of sensation.

I am a self-employed forester and struggle to make any income let alone a living, but many others are worse off than I.
I praise God I have wonderful wife and who makes a good income. We struggle financially, but things could be much much worse.
I still do field work 2x’s a week, but must price my work by the job and not by the hour, i work safely but cannot always put in a full day and steep terrain can really slow my productiveness.
Slowly I am getting better, but must be proactive in my treatment, learning to ask lots of questions and not assume every detail is covered adequately. Medical professionals and insurance people are still just people and get distracted and have high patient/work loads, so they do mess-up, but usually by accident.
Be polite but engaging and treat them as professional and friends so that they will willingly be on you team and work to expedite your care. And don’t be afraid to fight for good care and to fire those who are not performing as they should.

Best of luck to yoou with your ‘journey’. Be positive, and persistent. Keep working to get better! God bless you 😀

I was diagnosed in late February 2011 and by the time insurance allowed treatment in early March, I was feeling some additional loss of control/sensation almost daily. Early on the morning of the fourth day of the five consecutive days of IVIG treatment, I felt no further loss of sensation.

I am a self-employed forester and struggle to make any income let alone a living, but many others are worse off than I.
I praise God I have wonderful wife and who makes a good income. We struggle financially, but things could be much much worse.
I still do field work 2x’s a week, but must price my work by the job and not by the hour, i work safely but cannot always put in a full day and steep terrain can really slow my productiveness.
Slowly I am getting better, but must be proactive in my treatment, learning to ask lots of questions and not assume every detail is covered adequately. Medical professionals and insurance people are still just people and get distracted and have high patient/work loads, so they do mess-up, but usually by accident.
Be polite but engaging and treat them as professional and friends so that they will willingly be on you team and work to expedite your care. And don’t be afraid to fight for good care and to fire those who are not performing as they should.

Best of luck to yoou with your ‘journey’. Be positive, and persistent. Keep working to get better! God bless you 😀