April 16, 2010 at 4:09 pm
I am so delighted to learn of your son’s miraculous recovery. In my case there is only a 50/50 probability that the CIDP diaagnosis is correct so I worry about my lack of improvement.
After my first treatment my low blood count made them decide to lower the dosage 25%. My wife has always had a concern that I may not be getting enough. I don’t remember what the current dosage is. I will ask Tuesday April 20th at my next and last scheduled infusion and let you know.
You’re the first person I’ve communicated with through the forum. It’s nice to know there is someone out there who cares.