csf & treatment

December 25, 2007 at 9:18 am

While in the hosp. on 12-12 thru 15th, no one ever mentioned that the normal csf protein results might be a false negative or that it could be too soon to show an elevation. I didn’t know enough about it to [U]insist[/U] on treatment at the time. When I see the new MD tomorrow, I will be better informed ([B]thanks to you guys[/B]!) and will be more assertive about treatment. I’ve got a timeline down and will take with me to doc, hope that helps. Orig. neuro called me yesterday morning to check on me, said the emg and ncv would not have been useful tests at hosp., would have been too early but that tomorrow is good timing. Dawn, I can’t thank you enough for the advice on the rate of ivig! I want to be as knowledgeable as possible when I get to the treatment stage. Feel free to send me more as you think of it.