Cranial Nerve

June 11, 2009 at 2:36 pm

Hi Sue,

My C.I.D.P. has cranial nerve involvement. I suspect that may be your situation as well?

When I’m suffering a particularly bad attack, have missed a dose of I.V.I.G., or am just generally crashing, I completely lose the ability to taste food. Eating becomes a chore, as everything tastes like cardboard.

Methylprednisone did absolutely [U]NOTHING[/U] to improve my condition, but then everyone responds differently to different treatments.

Good Luck!

Kevin (a.k.a. KHS730)