Cranial Nerve
June 11, 2009 at 2:36 pm
Hi Sue,
My C.I.D.P. has cranial nerve involvement. I suspect that may be your situation as well?
When I’m suffering a particularly bad attack, have missed a dose of I.V.I.G., or am just generally crashing, I completely lose the ability to taste food. Eating becomes a chore, as everything tastes like cardboard.
Methylprednisone did absolutely [U]NOTHING[/U] to improve my condition, but then everyone responds differently to different treatments.
Good Luck!
Kevin (a.k.a. KHS730)