May 10, 2010 at 5:52 pm

Ms. Judy…

Does this new neuro specialize in CIDP?

If not I would try to find one that does, many neuro’s don’t fully understand CIDP from what I am hearing.

How do they know you don’t have CIDP?

Can anyone help Ms. Judy find a neuro in her area if she needs it?

Keep your chin up!

Rhonda from Canada


January 30, 2008 at 5:20 pm

Wanted to clarify that we did not check with Medicare . It was the doc that said that Medicare does not pay unless it is outpatient and you do not want to do your first infusion as an out patient . ( I guess so they can monitor you better) He did not say.

Well I appreciate all of you as I did show my husband these suggestions. Told him I was really worried about this option of prednisone and Imuran. He said it was ok and not to worry about him. Also said doc has not given us the time of day as far as I am concerned. He said we see the practicianer Feb 5th so we will have our questions and we are thinking she will take the time more than him.

Depending on how he does on this (started today with Pred and Im) we will be watching closely . Bill needs to get blood tests every 2 weeks to check liver , etc. He also goes to his family doc who we really like. I will go also to see what he says.
I am skeptical but willing to see how it goes in the next month.


October 25, 2006 at 6:48 pm

Hello Gabby,
The first thing to do is to go through all the tests, which usually are blood work (mainly to rule out things), EMG’s, NCV’s, MRI’s and for many of us, the spinal tap/lumbar puncture is done last. The spinal tap was what gave a confirmed diagnosis of CIDP for me. If you feel okay about telling us where you live, there might be another member who lives near you.

Welcome to your new family, where we feel what you feel. Many of us have a difficult time getting a diagnosis or are mis-diagnosed.