CIDP Treatment update

Well about a week ago I saw my Neuro and he conducted another EMG

He said that there really wasn’t any change between this test and the last one done in April. That which too me means alot of change. During this time period I had relapsed and lost the use of my hands and arms for a couple of weeks and became extremely weaker.

I am currently using a wheelchair and rollator to get around. This is much different than a few months ago when the last test was done.

Last week my Neuro started taking me off Predisone and put me on Cellcept. He reduced my Prednisone from 60 to 40 and put me Cellcept 500 2 times a day.

I am really hoping that this does work and makes it worth the side affects, I have not been able to sleep at night anyway (I cant stay awake during the day) and I am swelling up quite abit.

The Neuro is also starting me back on IVIG in home treatment. They are going to do in home treatment for a five day treatment once a month for the next 6 months ( Insurance just approved it Friday)

Some of the nerve pain has come back in my feet as well so I am hoping that all these side affects will eventually go away

Anyone have any experience with Cellcept.