checking in….has been a while.
Lori, glad to see that you had a great experience at the Mayo Clinic as well. I really liked it alot. But I have to admit-even they don’t have all of the answers to this crazy cidp. I think the doctors need to get onto this and other sites and they would be amazed how much they could learn from the patients. I believe they do the best they can under the circumstances. It’s a trial and error type of thing I guess.