Charcot Marie Tooth

December 2, 2006 at 8:35 pm

Hi Kelly

I can really appreciate how stressful it is waiting for a diagnosis. Want to let you know that I and others in my family have CMT, with varying degrees of disability. Everyone walks independently, including my 68 y.o. mom and 70 y.o uncle. The good news is that diagnosis is more straight-forward with genetic testing, although there are variants as yet identified. Its my opinion that CMT is alot easier to manage than CIDP, but that may be because I’m more familiar with CMT. And IVIG still scares me.

Let us know how it goes!