Cats Chew on Infusion Tubing
Hi Ms Linda,
I have recovered so much within the first 18 months on intensive IVIG-6 monthly. Here it is year 4 and where I am physically is where I’ll stay. I can say CIDP does morph-changes like the weather.
Silly pain doctor yesterday checking my legs for reflexes when my ENTIRE body is affected. He then said “How long will you have to have these infusions”.
Once again as usual I replied forever-forever.Put that in my chart, silly man.
Just a note. My kitty loves to chew on the IV tubing and the blue drip stopper that hangs off it too. So watch out for your playful felines seeing this tempting toy dragging by them. Mine even attacks it when I’m in bed. Keep an eye on those furry rascals.
The nurses must wear fresh gloves when inserting your IV. The area needs to be rubbed well with alcohol/antiseptic.When you start to feel ill tell them immediately as the infusion rate can be lowered, medicine given by the IV and maybe you’ll need to lay down.
Some doctors prescribe a relaxant pill like Ativan to make you less anxious and puts you to sleep. At the clinic we got that in our IV for muscle spasms/jitters/to relax and nodded off. It’s not allowed to be given in IV at home for some reason. Benadryl can knock your socks off but made me hung over and very thirsty.Sometimes asking for half the dose might help then if that is working you can request the second half.
There are one or two Medicare Part D plans that cover the cost rather well.
Remember you’re in charge of the infusion rate and the nurses gotta listen to ya.
Best of luck.