Cathy
Hey Cathy, just re-read your post here and saw similar info on another thread about the “18 month” your as good as your gonna get dx from the neuro. When I went to see the SSD doc in March, I was only 9 months out and he said I was as good as I was gonna get. I cried and called my neuro from the SSD doc’s parking lot 😮 He called me back later in the day and said that’s good 😮 , the SSD doc is on your side but that doesn’t mean he is right. So, I take it one day at a time, sometimes 2 steps forward and 3 back. Sometimes a baby step forward with progress. But it’s quite depressing to hear the “good as your gonna get” dx 🙁 !
Cathy
Cathy, I am so happy for you that you are getting the treatment now and I will keep you in my prayers and hope that someday soon you will be able t walk again.
I have been seeing me getting worse everyday and no treatment is getting depressing. I’m dealing with alot of nerve pain. It’s constant. Hopefully soon they will have me diagnosed. It’s the wait that gets frustrating but I’m trying to deal with it the best I can! I wish you my best and hope you have a fast recovery! 😉
Cathy
I live in Annandale, PM me. If nothing else we can ‘talk’ out those bad days. I do think there is some sort of Neuropathy Association that meets monthly at Farifax Hospital, but it’s at nite and while I can still drive I won’t do so at night. You are not at alone, and here is a good place to be. I see that there is a chapter in Fairfax for GBSFI as well.
Cathy
I live in Annandale, PM me. If nothing else we can ‘talk’ out those bad days. I do think there is some sort of Neuropathy Association that meets monthly at Farifax Hospital, but it’s at nite and while I can still drive I won’t do so at night. You are not at alone, and here is a good place to be.