cant sleep

January 18, 2009 at 10:38 pm

Hi Kimberly
I havent posted or replied in a long time but I decided to check out the forum tonight and saw your post. I know its been months but I was curious how you are doing since I also had GBS in April of 2004 (also had it 10 years prior) and was fully paralized and on a vent like you. I finally came home in August to recover better at home. I too have such a hard time sleeping. I used to be in bed by 9 pm and could sleep all the way through. Now I can stay up until 1am and have a hard time falling asleep and my husband snores ALOT which is frustrating in itself and then I keep looking at the clock and seeing how much sleep I am NOT getting and I get more frustrated. I also take Ambein CR and I must say I love it but I am not a drug taker and always fear the “addiction” aspect even though they say its not addictive. I do the same thing you do, go off it and when you go off it for those first two or three nights you cant sleep at all. I was doing really well and two weeks ago I had so much pain that I took it again and I keep saying I will go off of it but I really like sleeping at night and then I tell my husband to “have at it” with his snoring because it doesnt faze me. I will tell you though I have figured out that it works best when I take it at about 10:45 or 11:00pm and i stay up until I am as loopy as I can be and then I get my full nights sleep. On saturdays (because of early church on sundays) I take it at 10:00 pm and go to bed at 11:00 and I wake up through out the whole night. My whole family constantly jokes about how I am when Im on ambein and anytime I say I didnt know something or I make a mistake the first thing they say is “were you on ambein?” Let me know how your doing and if you found anything else that works. I think the worst is the stress that developes from the frustration of wondering IF we will get any sleep.