Bump

bump? It means I replied so this subject gets ‘bumped’ back to the top of the list.

I also had genetic testing by Athena, back in 2006. Let’s get specific, I’ll tell all-

Athena Diagnostics Co-GM1 Triad IgM, IgG, IgA; Co-asialo GM1; CoGD1b Negative The Co-GM1 Triad profile is negative…unlikely…symptoms are associated with an autoimmune response to these antigens.
Athena Diagnostics SMN Complete Profile for the presence of autoimmune antibodies against listed antigens Co-Gm1 IgM IgG IgA GM1 Co-GD1b SGPG ELISA MAG ELISA MAG Western Sulfatide IgM IgG GALOP Recombx Hu Negative The SMN Complete profile is negative…unlikely…symptoms are associated with an autoimmune response to any of these antigens. MAG Western Blot Analysis

And, by Athena in 2008-

Athena Diagnostics SMA Evaluation SMN1 & SMN2: 2 copies Normal
Athena Diagnostics Kennedy’s Disease (SBMA) DNA AR allele1: 21 CAG repeats This individual does not possess the SBMA CAG mutation

These are the expensive tests the Cleveland Clinic Dr was talking about when he said- “…there are expensive tests you can have. But, if the results are positive, there is nothing you can do about it…”

Yeah, nothing but get a ‘correct’ diagnosis and know what you are dealing with. If it’s hereditary, you are probably out of luck, treatment wise.

Anyway, what “we” are talking about is not those of us who have the ‘correct’ diagnosis. Rather, the thread is aimed at those of us who believe we have the right diagnosis, yet we may not.

Hence, my encouragement to consider two, and yes, even three concurring opinions. And, OK, OK, I no longer care how much it costs!