Big Hug

March 25, 2010 at 10:33 pm

I know what it is like to get discouraged and cry, cry, cry. We on this board all know what it is like to get discouraged, so always come on this board whenever you feel like you need someone to talk to. I do get IVIG’s and they are helping somewhat, I still have a lot of pain and can’t get it under control. I have heard from my Neuro. that sometimes people can have a bad reaction to some brands of IVIG and then they need to be switched to another brand. Try asking your dr. if that would possibly help. Also, if you are not getting better, maybe a second opinion would be useful. My doctor wanted me on Cellcept along with IVIG, but I said no. I know it is hard going through this, especially if you are single with children, but try to keep a positive attitude even if things look bad. We are all here for you and any time you need a little nudge, just get on this board. I will keep you in my prayers and send you a hug;) .

Clare in Michigan