Hi Laurel,
I’m sorry your husband has had such unfortunate medical attention, it is stories like yours that make me realize that I really am one of the lucky ones with this disease (as far as a diagnosis). It took me a while to realized something serious was going on with me. I diagnosed myself on the internet. I got as far as nuropathy and learned that I needed to see a neurologist. After many tests the neurologist diagnosed this disease with in a month. I have probably had it for about 5 years (I can say that now that I know what to look for and I know the symptoms). The symptoms came on very slowly and with months, weeks and many days in between the tingling, burning,numbing and tripping. I am not one to jump at a chance to go to the doctor. Long story short I was diagnosed in July and I have so much to learn. Thank you for sharing your story, I’m grasping all the information I can get my hands on.

[FONT=”Comic Sans MS”]Thanks to everyone for all of the wonderful and helpful input. Kelly, how do you know if the inflamation has damaged the axons to the point of no repair? Would that be thru an EMG test or some other test? Thank you for your patience, I have so much to learn. [/FONT]

[FONT=”Comic Sans MS”]I agree, anything is worth a try………. I’m not sure where it is, I think they are running everything thru insurance right now and then they will get back in touch with me. [/FONT]