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Anonymous
October 23, 2008 at 9:52 pm

Hi Kass,
I guess I’m one of the few remaining oldies that’s still here. We’ll be meeting for the second time at the symposium. Our family has grown and our arms are always open when someone wants to return.

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Anonymous
October 22, 2008 at 9:28 pm

Hello,
I was diagnosed with CIDP in 1998 and I never had pain, mostly the numbness, tingling and prickling, but since it’s severe for me, I consider that numbness to be it’s own kind of pain. I have never needed a pain medication, but if something would relieve the numbness, I’d be on it yesterday.

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Anonymous
January 8, 2008 at 11:57 am

Hello Julie,
You have such a beautiful SPIRIT and it comes across as an uplift for all of us. What a wonderful gift that laptop was, family knew what you needed.

[IMG]http://img127.imageshack.us/img127/6903/2frogsco8.gif[/IMG]

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Anonymous
October 2, 2006 at 11:47 pm

Hello Family,
Boy, it’s so great to see we are back and I hope we’re stronger and better. We should advise our new members to “buddy-up” with a senior member by exchanging emails, so if this should happen again, they have support.

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Anonymous
August 18, 2006 at 4:42 pm

Hello Sonja,
Just in case you don’t get the PM I sent you on Aug. 18th, I wanted you to know that we CAN share a room. My friend, who lives in a USA state a few hours away from Phoenix, may or may not join me. But she won’t stay at Embassy Suites with me. I should have been clearer about that. She’ll probably just make the drive for the day.
I can share my room with you, be assured of that. I’ll post here again in October so we can talk a bit. When you said your mom was helping you, I thought you wanted your own room.
Liz

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Anonymous
August 12, 2006 at 10:22 am

Sonja,
I had offered to share a room with you but after reading your post, it sounds like your mom will help you so that you can get your own room, so I am going to assume this and “NOT” expect you. My friend in New Mexico, a state in the US near Arizona, may be able to join me.

We may meet at symposium.

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Anonymous
August 4, 2006 at 8:55 pm

Hello Sonja,
I’d like to know if you got my email sent from the forum. It was about the symposium.

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Anonymous
June 11, 2006 at 7:41 pm

Hello Sonja,
That’s good to know that you have a friend who will go to symposium with you. I just found out that my best friend who lives in New Mexico may be able to join me in Phoenix.

The foundation will not be mailing out detailed information until late summer. At that time you will have info on cost, rooms available, etc. The only thing we know right now is that symposium is being held at Embassy Suites. The foundation probably already has a floor reserved.
Liz

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Anonymous
June 9, 2006 at 8:52 pm

Hello Sonja,
I am going to try to go to the symposium in Phoenix, Az. (USA) in November. This will be the first symposium I have gone to, never strong enough before, but feel confident I can do it now. I am in a wheelchair and will be traveling alone.

I am open to sharing a room with someone and sharing the cost of the room and trying to help each other. I have CIDP.

Email/PM me, or post what your thoughts are on this.
Liz