Awesome Support and Advise
I can not thank you all enough for sharing your thoughts and recommendations with me. It was exactly what I needed to hear.
I now have a much clearer understanding of how I need to manage my
health decisions from this point forward. From my experience, it appears
most all Dr’s will tend to lean conservative unless you make the decisions
to do what is needed. I guess they don’t want the guilt of making too many
decisions for people and then the occasional negative situation occurs.
Thanks again everyone. I will digest all this from down at the Beach in Maryland for the next few days, then go to the Neuromuscular Dr. next Thursday with a clear direction.
God Bless all those afflicted with any condition (especially children), and their caregivers and family.