February 7, 2007 at 11:57 pm

I have never heard of this treatment before, but I truly hope it is the miracle you have been looking for. I have always believed that there is a “magic bullet” out there for all of us who suffer from CIDP, but since we are all so different, it is never the same for any two people. I was in the same condition for your son for over two years, & was treated with twice weekly IVIG, 17 plasmapheresis treatments, weekly solumedrol infusions (prednisolone), imuran, etc. For me it finally was 9 months of massive cytoxan treatments that arrested my CIDP. But even then I had to wait about 6 months after my last infusion to see any nerve regeneration. It was a very slow recovery, & I still have some residuals…

Please keep us posted, maybe this can be the next miracle treatment for CIDP. And my heart truly goes out to your son, I know how horrible being in that condition can be, but I can’t imagaine it at his age, as I was 48 when my CIDP hit.
God bless him,