Answers for Kelly

November 28, 2010 at 4:57 pm

Hi Kelly,
I just finished writing you a 5 paragraph answer, pouring my heart out to you and of course the fking thing erases!!!! 🙁 SoI am sitting here crying because I don’t want to go through all those emotions again. I am going to make this answer very black and white becasue I am just depleted and defeated……….
I go in through the ER every 2 months or so because my legs give out on me. I am given 35 grams of gammagaurd IVIG for 5 days. The infusion time usually takes anywhere from 8-12 hours. The reason I am in for 6 days is because since I go in through the ER, I lose a day with the ER staff finding me a room and getting the doctors orders in the system. He knows when I am coming in because we coordinate it so that he is the doctor that is on call. I have not received a treatment since my last one nor since i was release from Baptist Hospiutal with orders to go straight to him for therapy because I cannot afford to leave my family again for 6 days:-( I just cant…….

[QUOTE=Emily’s_mom]I have a few questions.

1) Why are you admitted for 5-6 days at a time?

2) How much IVIG are you getting? What brand? And what is the max flow rate?

3) How often are you getting IVIG?

4) Did you receive a treatment at home since you last saw the dr 2 months ago?