again, thanks for the good wishes…

August 17, 2009 at 2:25 pm

i hear you dawn…
but its not quite like that–
for instance, these are autologous stem cells, meaning my own– hence, no rejection worries. secondly, in order to qualify for the protocol, you only need to have tried and failed two regular therapies. in my case, ivig made me worse and cyclosporine nearly killed me… steroids work, but you know the cost of that exchange– like a deal with the devil ๐Ÿ˜‰

many egos, i mean neurologists, tend to feel this course of therapy to be too aggressive– since they consider cidp a “treatable disease.” i wonder if they would feel that way if they had the disease. also, medical conservatism in general plays a part– fear of risks, liability, and of course, once again, ego.

check out some of the links i have posted on my website under ‘links” page. it will give you, or anyone interested, a better idea of the treatment this particular hospital is doing. [url][/url]

enjoying the dialog ๐Ÿ˜‰