After third dose of Gamunex

October 25, 2010 at 6:05 pm

I agree with Lori. I was just diagnosed in July and have had 3 doses of Gamunex and will get the fourth next week. Anyway, this is the only type of IVIG that I have had so like Lori I do not have anything to compare it with. I had different reactions to each one:

1st—Was given a loading dose during two days–I had fever about the same as you described that subsided in 24 hours, but I felt like I was dying—no energy and a migraine headache even though I did drink a lot of fluids. It took four days to recover from it. On the fifth day I felt okay and was able to go back to work.

2nd—No headache and felt great.

3rd—Slight headache and very lethargic—in fact am still very tired. Was able to return to work after one day of bed rest, but was not feeling very good.

4th—I am to receive my fourth treatment next week and also afterward will get a thorough exam by the neurologist including EMG, etc. Yuk!!!

I was skeptical when I first started it but I have had some return of feeling in my feet/legs but disappointed that it was not a dramatic change. It is easy to get discouraged because you do not know what to expect when you wake up the next day. I try to take every day in stride and hope for the best.

I wish there was a magic bullet for this, but alas we are all different and what works for one may not for another. Hang in there.