acurious scott’s mother :This is in regards to the thread that my son sent

December 5, 2007 at 11:22 pm

[QUOTE=Dawn Kevies mom]You did not mention where you live. If you call the foundation tommorrow, they can get you exactly where you need to go.
Good luck!
Dawn Kevies mom[/QUOTE]

Dawn : I am not sure how to do this to get the info out to everyone so if you see this is not the right way please let me know. I did contact the Foundation and talked to a couple of people and was told to contact a certain person in Ohio although we are formerly from there we cannot go that far. It was only to talk to someone with some knowledge and maybe she could guide us. Well she is busy with sick family and to make things to the point we have called people and doctors and tried to get my husband into a doctor he has found through a support system but to no avail. We are close to Knoxville Tn. and cannot have that doctor as my husband already saw someone in the same office and their policy is to not change doctors. Unfortunately policy takes presidence over someone health and life. At this point I have been hit with a brick wall. This has been going on for about 22 months and getting worse. Although no one has really diagnosed him with any type of neuropothy other than perphical(sp?) from what we have read he thinks he has cipd but until we can find someone here I do not know what else to do. Although I am leaning on going to some other area. Not being from Tennessee until the last 2 and 1/2 years we do not where to go.

Can you or someone reading this please give us some insight here.