September 4, 2011 at 1:00 pm

Looking back, I think TIME was the way I accepted CIDP. I went through the normal grieving process while I lay virtually bedridden in the Mayo for 4 months & all of the months after I came home in the same condition. Although getting high dose cytoxan did give me back a pretty good life, I still need AFOs & a cane when I go out, need at least 10 hr. of sleep a night to function at all, can’t run, always feel the fatigue. But if I get the rest I need, & use my power chair in the mornings to save my energy, I lead a pretty normal life. Actually my life is pretty darn good. But it has been almost 10 yr. for me, not sure when I actually accepted having CIDP, but I just did. There are so many worse things out there, that after awhile CIDP just didn’t seem that bad.