A year and 7 months / Good and Bad

September 24, 2009 at 1:58 pm

Well, the saga continues. This is not fun stuff, and as I read and learn more, I do have to admit I am lucky in alot of ways.

This whole disease is very confusing to me. I have good days and bad. Some days I wonder if I ought to request another IVIG or just bear it out. I am gonna have another nerve test the first part of October and suspect based on that result, I / Dr will make decision on a new round of IVIG or not. By the way, I have had three total in the year and half.

Another interesting thought; I tried to hook up with Long Term Care for myself and wife. I did not qualify; I have to be symptom free for two years (No IVIG). My wife did sign up…thank you! It makes me wonder if I should go for the two years or opt for another IVIG should the consensus be that it would help. Again, the confusion, will it really help or not? How do I know whether to go for it again? Do I need to start to lose vision or have constrition of the throat? Are the symptoms I have now just the repair process? I am 57 and feel like I am 90. Bottom line, my vision is good, (I had lost it for 5 months initially). Swallowing is good and I am gaining weight. Sleep is good and if I do have problems, Doc gave me some sleeping pills. I also take Prosac (sp) and have some Ridalin sp? to help on some of the really beat up down days…. I just don’t know for sure that i am getting better. Most days I feel like someone just beat me up. Arms, shoulders and neck are always stiff and sore. Lips and cheeks are numb and fingers have limited coordination and feel numb too. Forget any fine dexterity in the fingers.

Well not much else to report, just wanted to get this off my chest. Let me know if anyone else out there has any additional thoughts or ideas. Anyone taking any supplements? Mylear Sheet repair pills?? Alpha Lipolic Acid, Liquid Vitamins, Juice Plus [url]https://www.juiceplus.com/nsa/content/ClinicalResearch.soa[/url]

Bye for now.