2 years out

Hi Karen-exactly 2 years ago Jan15 I started IVIG…was essentially paralysed from the hips down and in a lot of pain in the back and thighs. Feet felt like I was standing in a bucket of wet coarse beach sand and felt cold, although they weren’t. After IVIG, improvement started and I was soon walking with a walker (3 weeks) and I recall a bad part of the walking part was the inablity of the ‘behind the knees’ area to support my weight…the legs wanted to buckle due to this.It took several months for the frequent zings or tingles to subside and for the fatigue to fade. Now, two years out, the fatigue is rare but the zings come back a bit anytime . It is not scary. What is scary is the numbness in the hands which happens from time to time but only when it feels like the same kind which occurred after I started having difficulty walking and had all the back pain. Now this hand numbness from GBS cost me control of my hands and weakened my upper body strength. By the time the hands got bad, I lost the ability to walk….ascending paralysis….the damage was even worse further down. I hope your Mum has the following success as I had—-
There is hope for your Mum and all others:two years out I can do everything I did before, and more but have to watch the sense of balance when fatigued and live with any tingles.
The knee reflexes also came back after about 1 1/2 years…good luck….Ray