Reply To: Two flair-ups since October

February 12, 2023 at 9:59 pm

Hey Bryan – Thanks for sharing your experience with those vaccines. I too have been slightly pressured to get Covid, shingles, flu, & pneumonia vaccines. Hard pass for me.

I have a couple of questions.  Have you just been on cellcept and no IVIG, prednisone etc.?  If only on cellcept did you wean off of IVIg? Also, if only on cellcept I’m wondering if possibly your bad antibodies are building up, then the vaccines pushed your body into full on attack mode.

Is the plasmapheresis helping you regain any strength?

I currently take cellcept daily, IVIg and solumedrol every 6 weeks.  Fully functional. Goal is to only be on cellcept, so we are reducing the dosage of IVIg slowly.  I have minimal symptoms a couple days before infusion.  Also looking in to Hizentra subcutaneous?

Hope you are feeling better each day.