Reply To: Two flair-ups since October

February 10, 2023 at 6:10 pm

Thanks Dave,

I’m been on Cell-Cept, 2000mg for about a year.  Maybe it just can’t overcome the vaccines…

I was in the rehab hospital getting PT and OT, but my wonderful insurance cut it short 5 days, so I just decided to come home.

I’m spent spiritually and physically.  I can get out of chairs and walk short distances with a walker.  My friends are doing my laundry and helping me where they can.

So now it is a week after my last plasma exchange.  I went from basically unable to move, unable to feel touch to my hands arms, legs, and feet to regaining some mobility.

But, it seems so short of what I expected.  My doc wants to start Ivig again in 3 weeks, but we have to get the insurance to approve it.  I’d feel so much better if I could restart Ivig and I’d expect I would physically feel better as well.

I’m rather bummed out.   I’ve never crashed this hard and have never had to recover this much.