Reply To: Two flair-ups since October
I’m been on Cell-Cept, 2000mg for about a year. Maybe it just can’t overcome the vaccines…
I was in the rehab hospital getting PT and OT, but my wonderful insurance cut it short 5 days, so I just decided to come home.
I’m spent spiritually and physically. I can get out of chairs and walk short distances with a walker. My friends are doing my laundry and helping me where they can.
So now it is a week after my last plasma exchange. I went from basically unable to move, unable to feel touch to my hands arms, legs, and feet to regaining some mobility.
But, it seems so short of what I expected. My doc wants to start Ivig again in 3 weeks, but we have to get the insurance to approve it. I’d feel so much better if I could restart Ivig and I’d expect I would physically feel better as well.
I’m rather bummed out. I’ve never crashed this hard and have never had to recover this much.