Reply To: Reaching out for my husband, who has been in the hospital for 5 weeks.

June 1, 2022 at 9:46 am

Thank you for your response, Jim. I really appreciate everything you’ve shared. I been trying to get my husband transferred to a hospital that has expertise in this and of course Kaiser doesn’t want to move him. The only thing they’ve done is reach out to the Sunset hospital, to a Dr. Wu to see what he thinks. He suggests starting my husband on Rituximab. You mentioned that it put your CIDP into remission. If you don’t mind sharing how so and how long did it take for you to see any difference?

I plan on starting an appeal with Kaiser today and I will contact Dr. Lewis to see what our options are with Cedar’s. I am so disgusted with Kaiser, their policies and the fact that they have 6 Neurologists but only 2 of them are even close to having the qualifications to treat my husband and because of their weekly rotating policy in the hospital, we can’t have them come and see him. I have to forcefully have the chief of Neurology paged every time I want to speak with him.  The doctor on call this week is terrible and is an epilepsy specialist. Why is he examining my husband? He is not a specialist in CIDP. Or as they are saying my husband has what they are calling “treatment resistant CIDP.”

Again, thanks for information. I am hoping I have more success today. I feel like every day I am fighting a battle for my husband and he gets worse and worse every day.