Reply To: Have you relapsed and recovered?

Hi, Sandra.

Yes, I definitely had a relapse, having had my first attack in 2016, being totally symptom-free for two years and then had a worse attack in 2018.

The good news is that on my second attack, I knew what it was right away, so I drove myself to the ER and was treated with massive doses of IVIG. I got a new neurologist, and he put me on a regimen of recurring large doses of IVIG (at home) along with taking 60mg of Prednisone daily. As my symptoms subsided, the amount of Predisone was reduced (I’m now down to 2.5mg a day), and in 2019, I switched from IVIG to SCIG.

I have not had any issues since, and it seems that whatever nerve damage I sustained has all fully reversed itself.

Good luck to you!