Reply To: Feet feel like the are collapsing and broken?

Hi Ausvoltz
I also live in Australia in the Northern Rivers and usually see specialists in Queensland on the Gold Coast. Since covid started I have only ever had tele-health consults with all doctors and specialists. It can be done by phone or Skype or any other means and is fully covered by Medicare.
I found that a lot of doctors actually prefer it these days since it means less traffic through their waiting rooms.
I had an extra long first time skype/video consult with an immunologist in Brisbane yesterday without problems and saved myself driving around for a full day. Prescriptions and referrals are sent by mail or email.
Also I am in email contact with the receptionist of my neurologist who passes on messages and books the doctors consults accordingly. I can really recommend it!

As for your pain:
I have also experienced same or similar symptoms for about two years and they have continuously spread out into other limbs and spine. While I was still able to exercise a year ago, walking is becoming increasingly more painful these days and when the progression is in full swing it feels like the legs are becoming too weak to walk. It feels like my nerves are exposed and very irritated.
I read a few times that every neuropathy is different, even though similar in nature.

For me the most obvious sign of active progression has always been a rise in temperature in my spine which I cool down with ice cold showers for 10-15 minutes or so even in winter ( I sometimes just let a cold stream of water run down my spine if the weather is too cold to have a complete cold shower).
Other than that I found high strength Curcumin (equiv. to dry rhiz 15.8gr, Curcuminoids 600mg with piper nigrum extract) to be effective. I took one in the morning and one in the evening but think the dose could be doubled since the effect is not very strong. you can get that from Chemist Warehouse (Healthy Care Brand or Bioglan) or Woolworths (Natures Own). Both these deal with the inflammation and have no side effects.
For the healing I found limited relief from protein supplements and amino acids as well as vitamin B12 and Thiamin, Fish oil and vitamin E and anything that reduces inflammation within the body including low carb diet.

Having said all of the above, these are all ways which have provided me limited relief, but are most likely no complete substitute for conventional therapy.
Since I started taking Prednisone I felt more relief in 10 hours that I have ever felt with alternative therapy.

I read in one of your posts that you mentioned you are allergic to Prednisone which is very tragic since it is so extremely effective. Perhaps you want to give it another try at some stage.
My Immunologist now wants to shift me from Prednisone to “Mycophenolate Mofetil” also an immune inhibitor, because most doctors are a bit worried about the side effects of Prednisone.
I so far had no side effects other than difficulty sleeping for the first 3 nights.
I found best results at 50mg/ day but am now on 20 after one month.