Reply To: CIP/CIDP symptoms worsening from IVIG

That’s good news! Now, are you also going to be taking an immunosuppressant drug like Cellcept so you don’t have to stay on the Prednisone forever? That is key. Prednisone is great, but our bodies cannot take it for a very long term. I took high dosage for 6 months. Also keep in mind that although you are feeling relief now, you may feel not feel perfect every day. Your body will be trying to heal itself and that will be likely 6 months. Based on your description, you unfortunately progressed further into the disease than me. Hopefully, you can get a good outcome.

My Stats, 200 lbs, 6’1″
80 mg prednisone 2 weeks
70 2 weeks
60 2 weeks
100 4 weeks, 60 seemed to little at the time.
90 2 weeks
80 2 weeks
70 2 weeks
60 2 weeks
was feeling much better
50, 40, 30, 20, 15, 10, 5 all about a week or so.

6 months total, take Cellcept twice a day. Never did IVIG. Gained 25 lbs. Once I stopped Prednisone, I started working out again about 2 months later. I was on the treadmill for the first time a month after that.

Best of luck!