Reply To: Cut off further treatment

Hi PeteM

“This is as good as it gets” sounds like a very lame statement in my opinion.
The damaged nerves need time to heal and if you’re not having new episodes,
IVIG does at least support the healing of the nerves.

I wouldn’t agree to such a statement, if you don’t feel back on track yet.
Whether you’re stay stable or not, is not predictable.

Heard many different cases (like myself), where the next episode followed in many years.
Others are dealing continuously with it.

Don’t let doctors cut you off.
They might have a scheme, but you are the one feeling and living with it.
As long as you feel the need for it, go for it.