Reply To: Anemia Due To CIDP?

March 4, 2020 at 1:11 pm

The bone marrow came back normal, but we’re waiting on the rest of the test. Thank you Edith. The hematologist is retesting me for some things the neurologist already tested, which is really very frustrating. Hematologist thinks that the IVIG is causing my blood work strangeness, because he Googled (yes, Googled!) neutropenia and IVIG, and found what we already found, that high dose IVIG and IVIG in pediatric patients cam cause neutropenia. He doesn’t care that my RBC, hemoglobin and hematocrit, as well as protein, calcium and eGFR keep going out of whack. And I’m on half the dose of what they consider “high dose.” But he wants to rerun the tests we already ran, so more bloodwork.

Honestly, I’m so frustrated at this point I’m ready to give up.