Reply To: Suggestions for help with nerve pain

I’m recovering from GBS (flu shot on 9/26) rather than CIDP, but your mentioning of tightness and pain in the legs resonates. My first two weeks I had excruciating pain and tightness in my legs that kept me up all might. The doctors’ initial expectation was that it was strictly nerve pain and prescribed gabapentin, which did nothing. After sitting the doctors down and describing the pain in detail, they experimented with some combos that targeted the muscles until finally something worked. The key for me was flexeril (cyclobenzaprine, a muscle relaxant); they also gave me baclofen (antispasmodic). So it might be worth getting the doctors to try something along these lines.

I hope this helps and that you find relief soon!