Reply To: Conflicting Diagnosis

Initially before sending me a neurologist, the doctors were saying my problem was spinal because the MRI revealed a compression fracture and stenosis (L5/S1). I was sent to physical therapy but it didn’t help much. Eventually I was sent for a nerve conduction test which indicated demyelination, then later a spinal tap that confirmed CIDP.

I started IVIG in December. I have noticed a small improvement, but nothing that gets my hopes up.

FWIW: During my whole ordeal, I was online searching for *anything* I could find that might help. Eventually I ran across CIDP which described the condition perfectly. I contacted my doctor and he pushed to get me into the neurologist quickly rather than waiting several months. If I had to wait those few months, I may have deteriorated to the point of not being able to walk.