Reply To: New Diagnosed-IVIG question
I started Gamunex in 2017. Did a regimen for 18 months. Same as you’re experiencing, the neuropathy just kept getting worse. When I was diagnosed with Lyme for the umpteenth time, my neurologist suggested taking a break from the infusions. I agreed, not seeing any season not to. After 8 months of Lyme treatments my CIDP got progressively worse. Not just the nerve damage, I got weak, legs, hands & arms.
My neurologist never had a plan B. None of us as patients should have to bring new ideas to the table, but if we wait for these doctors to make plans, you’ll be waiting till hell freezes over.