Reply To: New Diagnosed-IVIG question

December 15, 2019 at 2:47 pm


My symptoms were similar to yours when I was diagnosed in March/April. I did not do IVIG, instead high dose prednisone for about 10 weeks and then started tapering to zero by mid-October. I also took and currently take an immunosuppressant drug. I’ve been off of the prednisone for 2 months and I can say I feel like I am basically back to my old self except for the fact I’m a bit out of shape but that will correct itself as I start to workout again now. Your nerves will need all of 6 months to heal before you feel perfect again so keep that in mind also. I have yet to really hear about anyone going into remission by only doing IVIG. Prednisone is a huge help even though there are side effects, you have to go into the treatment plan knowing you are going to get off of it and replace it with an immunosuppressant drug. I am a 50-year-old male and was just under 200 lbs before treatment. Now I am 216 pounds but working my way back to under 200. I think I will get there in a few months.