Reply To: Anyone with similar symptoms?
Mine is mostly in my feet and legs, mostly numbness but sometimess I get these random sensations that feel a lot like being zapped with a stun gun. I do have tremors in my hands though so my dexterity has suffered. My case seems minor too compared with others I’ve been reading about but I suspect it’s only because I was diagnosed before it could progress any more. So far I have yet to get IVIG because of the shortages (hopefully coming this week…) . My Prednisone has been cut to 30mg/day and it seems now that it’s only holding it off from getting worse.
I’ve also noticed sensitivities to temperature. Everything from taking a shower to drinking cold drinks. I’m wondering if others have this as well.